Independence Days
Designing for self-reliant, independent living
Resources
Department of Health – Long Term Conditions
Includes information on long term conditions; case studies; ‘Your health, your way – a guide to long term conditions and self care’ and ‘Long term health conditions 2009: research study conducted for the Department of Health’
World Health Organisation, Chronic diseases
Includes Fact Sheets, Q & As, Topics & Sites
NHS choices
‘Your health, your way’ - NHS guide to long term conditions and self care, including ‘Real stories’, films of individual cases
Design and behaviour change
This is a useful guide on the principles of behaviour change.
Also useful: Design for behaviour change: Design with Intent Toolkit
Long term Conditions Alliance
The Long-term Conditions Alliance merged with National Voices in 2008 to create one unified umbrella charity representing service users and carers in health and social care policy-making nationwide.
Expert Patients Programme
This is a NHS-based training programme that provides opportunities to people who live with long-term conditions to develop new skills to manage their condition better on a day-to-day basis
Department of Health
General information
Other useful sites
The Digital Economy Research Hub at Newcastle University, where the research is organised into four main themes: Connected Home & Community; Accessibility; Transport; and Creative Industries.
Connected Home & Community
"Our vision of the connected home is one in which digital technologies underpin the care, autonomy and continued social integration of older and vulnerable people. Under this theme we plan to explore how digital technologies can support help people with cognitive impairments, and their carers, maintain their autonomy; and how older people living alone can be better connected with their extended families."
Dott07 Alzheimer project
Design Council case study on Diabetes
Design Council on health
DBA Inclusive Design Challenge 2008
Cognitive decline was the theme for the 2008 Challenge, and this link shows the six shortlisted proposals relating to memory, communication and the physical care environment.
The following are organisations that represent a variety of long term conditions:
Action for M.E
For almost 20 years Action for M.E. has been campaigning to improve the lives of people with M.E., a chronic disabling illness which affects almost 250,000 people in the UK.
Arthritis Care
Arthritis Care empowers people to take control of their arthritis, their lives and their organisation.
Asthma UK
Asthma UK is the charity dedicated to improving the health and well-being of the 5.2 million people in the UK whose lives are affected by asthma.
BackCare
Backcare is a national charity that helps people manage and prevent back pain by providing information and support, promoting self help, encouraging debate and funding research into better back care.
British Heart Foundation
The British Heart Foundation is the nation's heart charity, dedicated to saving lives every day through pioneering research, caring for patients and families, campaigning for change and providing vital information to help people care for their own heart health.
Changing Faces
Changing Faces is a national charity based in the UK that supports and represents people who have disfigurements of the face or body from any cause.
Connect
Connect is a national charity working collaboratively to promote effective services, new opportunities and a better quality of life for people living with aphasia (communication disability)
Diabetes UK
Diabetes UK is the largest charity in the UK devoted to the care and treatment of diabetes
Epilepsy Action
Epilepsy Action is the largest member-led epilepsy organisation in Britain, representing the UK's 456,000 people with epilepsy
LINK Centre for Deafened People
For 30 years The LINK Centre has provided intensive rehabilitation for adults experiencing the trauma of acquired profound deafness.
Migraine Action Association
The Migraine Action Association (formerly the British Migraine Association) is a registered charity with over 10,000 members.
MS Society
The MS Society is the largest charity dedicated to supporting everyone whose life is touched by MS
National Osteoporosis Society
NOS is the only UK charity dedicated to improving the diagnosis, treatment and care of people with osteoporosis and to maximise prevention for those at risk.
Parkinson's Disease Society
There are approximately 120,000 people in the UK who have Parkinson’s and 10,000 people are diagnosed with the condition every year.
Pernicious Anaemia Society
Psoriasis Association
The main aims of the Psoriasis Association are to provide information, support and advice to people affected by psoriasis and to raise awareness of the condition.
Speakability
Founded in 1979 as 'Action for Dysphasic Adults', Speakability supports people with Aphasia and their carers through its information service, publications, training resources, national network of self-help groups and programme of activities.
The International Glaucoma Association
A registered charity, formed in 1974, which offers advice and support to people who have glaucoma or who are at risk of developing it
The Stroke Association
The Stroke Association is the only national charity solely concerned with combating stroke in people of all ages.
Thyroid UK
Thyroid UK is a non-profit making organisation supporting people with both diagnosed and undiagnosed thyroid disease and related disorders.
Inclusive Design Resource Toolkit
This resource was launched in July 2007. It was commissioned by BT and developed with the i~design research team. It was developed to support designers and those involved in product development as well as providing a general guide to inclusive design for businesses.
EdeAN Design for All Education and Training (formerly RSA Inclusive Design Resource)
This resource was developed for design students, their tutors, professional designers, design managers and policy makers. As well as key contextual information and examples it provides comprehensive information on the strategies, tools and methods needed to develop design solutions that put people at the centre of the design process.
Other websites
Directgov
Accessible Technology contacts - organisations, charities and support groups that provide advice and information to disabled people on accessible technology. You may find useful information on their websites.
Usability First
Usability– everything you need to know.
The Usability Methods Toolbox
Usability methods– organised into four categories – inquiry, inspection, testing and related techniques. Good starting point.
Usability Net
Usability Net promotes usability in the design process, specific methods and tools and other useful resources.
RICAbility
Included on the website are details of their criticisms of the design of major domestic appliances in meeting the needs of older and disabled consumers: guidelines for product design and testing.
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