Including you
Resources
NHS Institute for Innovation and Improvement
The NHS Institute for Innovation and Improvement supports the NHS to transform healthcare for patients and the public by rapidly developing and spreading new ways of working, new technology and world class leadership.
Long term Conditions Alliance
LTCA is the umbrella body for national voluntary organisations in the UK working to meet the needs of people with long-term health conditions
Expert Patients Programme
This is a NHS-based training programme that provides opportunities to people who live with long-term conditions to develop new skills to manage their condition better on a day-to-day basis.
www.expertpatients.co.uk/public/default.aspx?load=PublicHome
Department of Health
Policy and guidance:Long term conditions
Other useful links and sites
DEMOS publication: 'Unlocking Innovation', looking at how public services
can better engage their users based on examples of best practice in the
public and private sectors
Unlocking
innovation
www.dott07.com/go/health/alzheimer-100
www.designcouncil.org.uk/en/Case-Studies/All-Case-Studies/RED---Diabetes-/
www.designcouncil.info/mt/RED/health/
The following are organisations that represent a variety of long term conditions:
Action for M.E
For almost 20 years Action for M.E. has been campaigning to improve the lives of people with M.E., a chronic disabling illness which affects almost 250,000 people in the UK.
Alzheimer's Society
Arthritis Care
Arthritis Care empowers people to take control of their arthritis, their lives and their organisation.
Asthma UK
Asthma UK is the charity dedicated to improving the health and well-being of the 5.2 million people in the UK whose lives are affected by asthma.
BackCare
Backcare is a national charity that helps people manage and prevent back pain by providing information and support, promoting self help, encouraging debate and funding research into better back care.
British Heart Foundation
The British Heart Foundation is the nation's heart charity, dedicated to saving lives every day through pioneering research, caring for patients and families, campaigning for change and providing vital information to help people care for their own heart health.
Changing Faces
Changing Faces is a national charity based in the UK that supports and represents people who have disfigurements of the face or body from any cause.
http://www.changingfaces.org.uk
Connect
Connect is a national charity working collaboratively to promote effective services, new opportunities and a better quality of life for people living with aphasia (communication disability)
Diabetes UK
Diabetes UK is the largest charity in the UK devoted to the care and treatment of diabetes.
Epilepsy Action
Epilepsy Action is the largest member-led epilepsy organisation in Britain, representing the UK's 456,000 people with epilepsy.
LINK Centre for Deafened People
For 30 years The LINK Centre has provided intensive rehabilitation for adults experiencing the trauma of acquired profound deafness.
Migraine Action Association
The Migraine Action Association (formerly the British Migraine Association) is a registered charity with over 10,000 members.
MS Society
The MS Society is the largest charity dedicated to supporting everyone whose life is touched by MS
National Osteoporosis Society
NOS is the only UK charity dedicated to improving the diagnosis, treatment and care of people with osteoporosis and to maximise prevention for those at risk.
Parkinson's Disease Society(Regular Member)
There are approximately 120,000 people in the UK who have Parkinson’s and 10,000 people are diagnosed with the condition every year.
Pernicious Anaemia Society
http://www.pernicious-anaemia-society.org
Psoriasis Association
The main aims of the Psoriasis Association are to provide information, support and advice to people affected by psoriasis and to raise awareness of the condition.
http://www.psoriasis-association.org.uk/
Speakability
Founded in 1979 as 'Action for Dysphasic Adults', Speakability supports people with Aphasia and their carers through its information service, publications, training resources, national network of self-help groups and programme of activities.
http://www.speakability.org.uk
The International Glaucoma Association
A registered charity, formed in 1974, which offers advice and support to people who have glaucoma or who are at risk of developing it
http://www.glaucoma-association.com
The Stroke Association (Regular Member)
The Stroke Association is the only national charity solely concerned with combating stroke in people of all ages.
Thyroid UK
Thyroid UK is a non-profit making organisation supporting people with both diagnosed and undiagnosed thyroid disease and related disorders.